Thomas's chest was closed this afternoon. Initially he tolerated it well, but around 4pm his blood pressure dropped. He was given volume and all inotropic meds were increased, but ultimately they decided he wasn't tolerating it and he is now having his chest reopened as I type this. We knew ths was a risk, as the first 12-24h after closure can be touchy. I'm so disappointed.
Please pray that he will tolerate this well and his blood pressure and other values will normalize quickly.
Pray that he is stable enough to try closing again in a few days.
This is such a roller coaster! Please pray that things will settle down and he will be strong so we can make some forward progress.
"how can you say the LORD does not see your troubles?
....Have you never heard?
Have you never understood?
The LORD is the everlasting God,
the Creator of all the earth.
He never grows weak or weary.
No one can measure the depths of his understanding. (Isaiah 40:27, 28 NLT)
Showing posts with label Setback. Show all posts
Showing posts with label Setback. Show all posts
Monday, November 28, 2011
Sunday, November 27, 2011
Sunday after rounds....
Even the doctors caring for Thomas aren't sure what caused him to fall apart overnight!
The top two theories are that he is over dry now (intravascularly depleted), and also that wasn't ventilating adequately.
He has had an air leak around his ET tube the past few days as he has been diuresing, and they changed him to a bigger tube this morning. His blood gases have improved, and hopefully that will continue.
They have increased his dopamine from 5 to 7, have stopped diuril, and have started a calcium drip. He also got albumin overnight and this morning. I'm wondering if he needs a little blood....he looks a lot paler to me than he has. His NIRS isn't really improving, and his o2 requirement has gone from 30-40% in the past few days. His hgb/hct are stable, but he has to be concentrated because of how dry he is.
He needs to be dry as can be for chest closure to be successful, but it's hard because you end up chasing a lot of other values that go awry. It's definitely a sensitive balancing act.
His fentanyl was increased and he looks more comfortable. I'm thankful for that.
TJ left a little while ago with three coolers of dry ice and frozen breast milk. I have to admit I was proud. He has been threatened with his life if it thaws!
Here are our prayer requests...sorry its more than usual! Thank you so much for interceding on our behalf!
-pray for wisdom and discernment for the doctors and nurses caring for Thomas, so they can figure out what is causing these changes and how to address them
-pray that Thomas will stabilize quickly
- pray that he will remain free from infection
-pray for his kidney function to improve. He has had blood in his urine the past few days as well
-pray that he will be ready for chest closure soon, and will handle it well
-pray that he won't develop a chylothorax
-pray that all of these little issues will settle down so we can move forward
-please pray that we will somehow be home together by christmas
-pray for safe travel for TJ and my mom
“Be still, and know that I am God!” (Psalm 46:10 NLT)
The top two theories are that he is over dry now (intravascularly depleted), and also that wasn't ventilating adequately.
He has had an air leak around his ET tube the past few days as he has been diuresing, and they changed him to a bigger tube this morning. His blood gases have improved, and hopefully that will continue.
They have increased his dopamine from 5 to 7, have stopped diuril, and have started a calcium drip. He also got albumin overnight and this morning. I'm wondering if he needs a little blood....he looks a lot paler to me than he has. His NIRS isn't really improving, and his o2 requirement has gone from 30-40% in the past few days. His hgb/hct are stable, but he has to be concentrated because of how dry he is.
He needs to be dry as can be for chest closure to be successful, but it's hard because you end up chasing a lot of other values that go awry. It's definitely a sensitive balancing act.
His fentanyl was increased and he looks more comfortable. I'm thankful for that.
TJ left a little while ago with three coolers of dry ice and frozen breast milk. I have to admit I was proud. He has been threatened with his life if it thaws!
Here are our prayer requests...sorry its more than usual! Thank you so much for interceding on our behalf!
-pray for wisdom and discernment for the doctors and nurses caring for Thomas, so they can figure out what is causing these changes and how to address them
-pray that Thomas will stabilize quickly
- pray that he will remain free from infection
-pray for his kidney function to improve. He has had blood in his urine the past few days as well
-pray that he will be ready for chest closure soon, and will handle it well
-pray that he won't develop a chylothorax
-pray that all of these little issues will settle down so we can move forward
-please pray that we will somehow be home together by christmas
-pray for safe travel for TJ and my mom
“Be still, and know that I am God!” (Psalm 46:10 NLT)
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