Statistics show that heart defects are the #1 birth defect in the United States, and about 1% of babies are affected. These defects are also the leading cause of infant death from birth defects.
Since I realized I would be a "heart mom" in July, it seems like other affected families have come out of nowhere to share their stories and offer support. Congenital heart disease affects so many families, and shouldn't be taken for granted.
In order to help raise awareness, Ruth has started a board on Pinterest dedicated to the "Faces of CHD." Pinterest is a very neat, very addicting website that allows you to "pin" things that interest you on the web. You can find everything from recipes, craft projects, home decorating ideas, and just about anything else. Sharing the stories of families who have been affected by CHD will help bring awareness to many people who might not realize how common and serious this really is. Thanks for your support!
I love this. Have you pinned Thomas yet? I would like to on the board I created. It's amazing how common this is and how little awareness we have until personally affected by it.
ReplyDeleteDr. Behm,
ReplyDeleteMy older brother, Henry, was born with Tetralogy of Fallot in 1958 and passed away at 5 1/2 months of age before surgery could be attempted at Johns Hopkins. So sorry for your loss of baby Thomas.
Harriet Walsh RN (Mother/Baby at Candler)
Thanks for letting me know about this! I will have to put Ruby on it!
DeleteThanks so much for spreading the word about The Faces of CHD on Pinterest! I so appreciate your efforts to increase awareness, and to share Thomas's story.
ReplyDelete