Friday, November 18, 2011

Friday Update

Thursday was a very busy day!
We got packed up to leave the hospital, and Thomas got transferred to Egleston just before lunch time.  We went over there to meet him, but didn't get to see him much because he was busy getting admitted- all of the doctors were seeing him, he was getting labwork, lines put in, ekg's, echocardiograms, etc.
His nurse yesterday was Amanda, and she was great! She will have Thomas throughout the weekend and we are thankful. 

Thomas is on some oxygen now and seems a little more comfortable.  His work of breathing really picked up yesterday, so I'm happy to see him resting. He is also on a medication called milrinone to help prevent pulmonary overcirculation (which will happen until his surgery)
He is jaundiced and on bili lights as well.

We are  both physically and emotionally exhausted after this entire week, so sorry for the lack of updates yesterday.  It was very overwhelming.  We are looking forward to a quiet weekend and spending as much time as we can with our boy.  He was so busy yesterday with all of the admission process that we had to leave him alone too so he could rest from all of the action.

Please continue to pray for Thomas:
That he will continue to grow and be strong for surgery
For wisdom for the doctors caring for Thomas
That they will see him as our precious baby, not as a complicated heart defect who barely weighs enough for surgery (minimum is 2kg, he is 2.2kg)
Please pray that Thomas will know how much we love him even though we can't hold him or be with him all the time.
Please pray for quick healing for me from the c-section
Please pray for TJ and me to be strong, and please pray for us to have sense of peace through all of this

"Come to me, all you who are weary and burdened, and I will give you rest."
Matt 11:28



  1. Oh Melissa your latest post just brought me to tears. I hope that you continue to heal from your surgery and that Thomas continues to get stronger as he prepares for his. Love you!

  2. Praying still for you all. Praying that you will heal, you will both be strong, the doctors will be wise, and will see Thomas as your precious baby more than a complicated patient. Praying for Thomas to continue growing stronger, and I KNOW he knows how loved he is even if you can't hold him a lot. Keep that faith.

  3. Melissa and family,

    This is Connie from our summer cruise. I have been following as closely as possible. Dan and I send well-wishes to all of you and especially Thomas. We pray that all goes well with the upcoming surgery. The pictures are a very nice addition. Know that you are thought of and cared about by many people...especialy here in Ohio.

    Love to all,
    Connie (cruisebuddy)

  4. We have been praying very hard - even the kids are following the blog and praying for you guys. I have "All of Me" in my head all the time and we are praying everything goes as smoothly as possible for all 3 of you. Be strong!
    Love, the Bates family

  5. He is indeed your precious baby, and I'm certain he knows you love him and are there for him. Sending many good wishes your way. Sarah E

  6. Praying & asking everyone I know to do the same. I know how exhausted you & TJ are & the frustration of not being able to sit at Thomas' side @ all times. Stay strong. God has it all under his hands. Much love~~~Steph

  7. praying, praying, praying.. I love ya'll!

  8. Oh, he is such a precious baby, and Melissa, you're one tough mama. This post made me teary. Thinking of you.

  9. We are still praying for you all - especially that the God who knit him together inside you will guide the ones who will help his heart. Wishing all three of you special moments this weekend.
    Whitney and family

  10. Deut 31:8
    "The Lord himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged."

    In the midst of the exhaustion, worry and joy - know that God will carry you. There are many prayers being said for Thomas -- who is beautiful and awesome BTW! The littlest of babies are some of the strongest I've ever seen. Hang in there and God Bless. Kristin Scott