Monday, November 28, 2011

Urgent! Chest closure update

Thomas's chest was closed this afternoon. Initially he tolerated it well, but around 4pm his blood pressure dropped. He was given volume and all inotropic meds were increased, but ultimately they decided he wasn't tolerating it and he is now having his chest reopened as I type this. We knew ths was a risk, as the first 12-24h after closure can be touchy. I'm so disappointed.

Please pray that he will tolerate this well and his blood pressure and other values will normalize quickly.
Pray that he is stable enough to try closing again in a few days.

This is such a roller coaster! Please pray that things will settle down and he will be strong so we can make some forward progress.

"how can you say the LORD does not see your troubles?
....Have you never heard?
Have you never understood?
The LORD is the everlasting God,
the Creator of all the earth.
He never grows weak or weary.
No one can measure the depths of his understanding. (Isaiah 40:27, 28 NLT)

61 comments:

  1. praying!
    corrie gee

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  2. were praying for you Thomas! Love, The Browns

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  3. 1Sam 12:16...... "...stand and see this great thing which the Lord will do before your eyes"

    As I pray for Thomas, this scripture keeps driving in my heart. HE is not to be taken lightly as every prayer is heard, spoken or unspoken.

    Alex

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  4. Praying without ceasing.
    The Cantrells

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  5. Dear Lord,
    Please stabilize Thomas immediately. We are trusting and pleading for you to help Thomas make it through this step! Give the doctors and nurses wisdom. Be with Mel and TJ...comfort them!

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  6. Melissa, you all are in our thoughts and prayers constantly tonight, tomorrow, and several days,weeks, and months to come. My heart goes out to you, too. I just cannot imagine what you are going through. You are so amazing...your strength and faith blow me away. Hugs to you.
    Love,
    Ginny

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  7. We are praying for you all.
    Love, Jen and Joey

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  8. Praying for Thomas and for you guys. Awaiting good news...

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  9. The Sokolowski FamilyNovember 28, 2011 at 6:50 PM

    We are praying!!!

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  10. We are praying.

    Lord when doubts fill my mind,
    when my heart is in turmoil,
    quiet me and give me renewed hope and cheer.
    Psalm 94:19 TLB

    Cynthia (Cindy) Howard

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  11. Praying without ceasing. I will not grow tired of praying for your precious Thomas. Your family is so loved, Melissa.
    Carla Nesbitt

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  12. Urgent prayers going out now. Keep us posted! -the Bates family

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  13. Praying hard for Thomas.

    The Roberts family

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  14. Praying for little Thomas and your family.

    "The LORD will perfect that which concerns me; Your mercy, O LORD, endures forever; Do not forsake the works of Your hands." Ps. 138:7-8

    Chris, Kim, Gabe and Ashby Rowland

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  15. Oh it is such a roller coaster. I hurt for you right now because I know how hard this is . . . But I believe that God has good things for your Thomas . . . And we are praying for you!

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  16. Tayloe, Olivia and I have been praying for Thomas and all of you. We will not stop. Hugs and love be with you. May God put His arms around you to give you comfort and continued strength. GOD BLESS YOU and YOUR FAMILY!
    -Raegan-

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  17. Melissa,I so wish that you did not have to go through this! I,too, have been on that roller coaster ride...May the Lord give you and TJ peace through this. And THOMAS is in our hearts and prayers without ceasing! Betty Anne Black

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  18. Praying hard for Thomas. I can't even imagine how difficult this is for you.

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  19. The Harden family continues to lift Thomas, you, and TJ up in prayer. I believe God wants you to hear this when you read Isaiah 41:10

    Isaiah 41:10-Fear not, for I am with you, Melissa. Be not dismayed, Melissa, for I am your God. I will strengthen you, Melissa. I will help you, Melissa. I will uphold you with my righteous right hand.

    Michelle, Casey, Luke, Stella Grace, and Gabriella Harden

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  20. The Kelley Family continues to pray for Thomas, and all of you, everyday and we know that God is there to wrap his arms around you. We are so inspired by your faith and strength! And, we will continue to pray for Thomas everyday until you get to come home!

    Jimmy Kelley

    Psalm 119:76
    May your unfailing love be my comfort, according to your promise to your servant.

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  21. Melissa and T.J. - We are praying for you and Thomas daily and am constantly amazed by your reliance and faithfulness to our God. Know that all three of you are loved deeply by God as well as the thousands praying for your family. Please let us know if there is anything you need. Love, Jessica and Andy Ackel

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  22. Melissa, I'm not sure if you even remember us but I wanted to let you know that our family is praying for little Thomas and for you. We live right here in Atlanta now just 20 to 30 minutes away from Egleston (depending on traffic). If there is anything you need, please let me know. If you need a place to stay, we have a guest room. If you need a home cooked meal, we'll set a place at our table. You are Facebook friends with our Melissa so you can message her or call me at 678.469.1979 anytime. Otherwise, just know that our prayers are with you.
    Sue & Jim Martin and Melissa Martin

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  23. Barbara and Carter HubbardNovember 28, 2011 at 9:56 PM

    Melissa and TJ
    We just found out about Thomas and all that you are going through. Our hearts and prayers are with you. We'll keep sending positive thoughts and prayers to you all. Please know that we are here for you whenever you need us.
    Love,
    Your Godparents, Barbara and Carter

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  24. My heart hurts for all of you, Melissa. WE are thinking and praying for you and your little guy. Hang in there.

    Anna McBrayer
    (Trail West '98, remember that summer?)

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  25. Melissa,
    Asking for favor from God for Thomas...and continuing to pray without ceasing.
    Jody

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  26. As i read this i am searching for something to say to uplift your heart and soul...and this came to my mind... God our Father doesn't line up the biggest, best, or even the strongest to accomplish his greatest work... And last time i checked-there was another Thomas that He cared enough about to appear to him personally. Keep your eyes open...Jesus is there with your Thomas too...
    I promise to pray for your hearts along with Thomas's.
    Love from Sugar Land, TX

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  27. Lifting the whole family up in prayer!

    Love from John-David, Erin, Sydney & Briggs Garletts

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  28. Praying for you all~~~~~The Boone Family

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  29. Lindsey & Logan WestendorfNovember 29, 2011 at 7:36 AM

    Praying for Thomas and you!

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  30. Praying for you and TJ through this terribly tough time.

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  31. Prayers sent from The Finn family . We <3 you Dr.Behm ! May God be with your family in this time of need (HUGS)

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  32. Melissa,
    Both you and TJ are in my thoughts and prayers. I am so very sorry for your loss and cannot even begin to send you the right words of comfort. Please know that you all will be in my heart and prayers for days and months to come. May GOD wrap his massive and loving arms around the two of you. For Heaven is a more beautiful place today.
    Love you,
    Ginny Phillips

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  33. Just as you have been since I heard about Thomas; you continue to be in my thoughts and prayers.
    I truly pray that you will receive the comfort and strength that our heavenly Father can bring at a time like this.

    Cynthia (Cindy) Howard

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  34. Praying for your precious little one, will ask St. Theresa, the little flower, to intercede for his healing and your strength and peace. Debbie

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  35. You, Thomas and TJ have been on my mind and in my prayers constantly since you first shared Thomas's story with us, and you will continue to be. I am so heartbroken to learn of your loss. I'm praying you find peace knowing Thomas is with our Lord and is healed now. You have been the most wonderful momma to that sweet baby, and I am forever changed for having been able to share his journey here. Much love and prayers.

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  36. I'm praying so hard for you!!!

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  37. You all are in our prayers! We love you Dr. Behm!! Love, The Bauer Family

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  38. Melissa & TJ,

    I am lifting you both up in prayer constantly and will continue to do so. I am so, so sorry for your loss, and I know that there are no possible words to provide the comfort and peace you seek. I pray you will find that peace in God & be able to rest in Him. Matthew 11:28 "Come to Me, all who are weary and heavy-laden, and I will give you rest." Your precious, Sweet Thomas is resting peacefully in His arms now.

    Much love & so many prayers,
    Britt Buckler

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  39. We have been praying for Thomas, TJ, and you, and we continue to do so. My heart breaks for your loss. I cannot think of anything more difficult than losing a child.

    You are a warm, compassionate soul, Melissa. My family's lives have been so touched and blessed by you.

    Know that you are in our thoughts constantly.

    Much love,
    Sarah Smith

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  40. The Sokolowski FamilyNovember 29, 2011 at 12:00 PM

    Melissa and TJ,
    We are so very sorry for your loss. We are praying for you!
    Love, Adrienne, Steve, and Alexander Sokolowski

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  41. The Westendorf FamilyNovember 29, 2011 at 12:25 PM

    Dr. Behm,
    You and your family are in my thoughts and prayers.
    With Love,
    Lindsey & Logan Westendorf

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  42. Melissa and TJ,

    You are in our prayers continually. There are not words to heal, but we have a God who heals the brokenhearted. Please cling to Him.

    Love, Kim and Chris Rowland

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  43. I am so very sorry for your loss.. I have been praying and will continue.

    Much love and many prayers,

    The Wright Family

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  44. I am so sad to hear about your sweet Thomas. The grief of losing a child is overwhelming and crushing and terrifying. But our good God is with you, and He sheds every tear alongside you. He is faithful even in the darkest of places, and He will comfort your broken hearts. I am lifting you up before the Lord and will do so continually.

    Two years ago our son Samuel died at Egleston when he was 30 days old. He, too, had severe heart defects. Life without Samuel has been heartbreaking, but it has also been a road that's drawn us so intimately to our Savior. God has shown up in amazing ways and carried us through the most painful days. He is a refuge, a fortress, the true Hope, and the Comforter. I am praying that you can see Him even in these horrible days without your Thomas.

    A verse that has been an anchor for me is Psalm 84:5-7, "Happy are those who are strong in the Lord...When they walk through the Valley of Weeping, it will become a place of refreshing springs when pools of blessing collect after the rains." I am hoping for your pools of blessing that will someday collect in this Valley of Weeping where you find yourselves.

    Peace, love, and prayers,
    Kathryn Apinis

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  45. Melissa and TJ,
    You are on our hearts and in our prayers! There are no words to express the deep sorrow that we feel with you! We love you!

    Kelly & Tony Wiggins
    Jeremiah 29:11

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  46. Dr. Behm, we had no idea until today the difficult road that you have all been on through the pregnancy and precious Thomas' beautiful life. We are praying for you, TJ, and your family to get through this difficult time with the help of God's grace and love and the knowledge that He has a plan and that little Thomas is safe with Him, in His arms. Please know that you are a blessing in the lives of all that know you and we pray that in the midst of your grief that you receive a blessing in whatever form God would send it. Our love always, the Holbrook family

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  47. Melissa and TJ,
    We are heartbroken for you and continue to pray for you both, that God would wrap you in His arms and strengthen and comfort you. If there is anything we can do or anything you need here in Atlanta, please do not hesitate to ask. Love you.
    - Jen and Joey Santorum

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  48. Mel and TJ,
    There are no good words for these times. We simply want to say we are deeply saddened for you both and continue to pray for your family. Maybe down the road the following quote will be comforting.

    Love you,
    Mindy and Justin Pauly

    "God is too wise to know all about us and what is really best for us to be and to have. And He is tood good not to desire our highest good and too powerful, desiring, not to effect it. If then what He has appointed for us does not seem to us the best - or even to be good - our true course is to remember that He sees further than we do - and that we shall understand Him in time when His plans have unfolded themselves. Meanwhile, casting all our care upon Him since He careth for us." -Henry Parry Liddon

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  49. Jesus really was there with Thomas...

    Still lifting you up in prayer from Sugar Land,TX...

    "Yea though I walk through the valley of the shadow of death, I will fear no evil...for thou art with me..."

    No fear sweet Mel - Thomas will know you when he sees you both...

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  50. We are truly sorry to hear of your loss of sweet baby Thomas. We hope that you can find comfort in knowing that Thomas is now with God, where we all want to be one day. We know there is an angel watching over you now, just as you watched over him during his time here. We will keep you in our prayers during this time.
    Love, The Landings

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  51. Melissa, so sorry for your loss. Thomas is now healed and resting peacefully with the Lord. May you find comfort in knowing that. Kris Barends

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  52. Melissa and TJ - I am so heartbroken for you both right now. I cannot fathom what you are going through, but i know if anyone has the love, faith, and strength to get through this, it is you. Please know I am thinking of you often, and hope to see you soon. Love, Kay

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  53. I have been following your blog and praying for your Thomas. I have never met you but knew of your blog/story from some of the residents I trained with at GHS, as they had prayer requests on fb. I cannot imagine what you have been through. I have been praying for all 3 of you and my mom has been following/praying too. You are amazingly courageous and faithful. I will continue to pray for your family and know that Thomas is wrapped in God's hands now with a healed heart.
    Sharlisa Hutson

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  54. Dear Melissa and TJ,
    We are so, so sorry for the loss of your precious little Thomas. Only you know what a gift this child was to you. We will be praying for you in the days and weeks and months to come.
    Tom and Arlene Johnson

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  55. Dr. Behm and family,
    I hope that God gives you comfort and peace at this very difficult time. You are such a shining example of His light. I cannot express my sadness for your loss. I just wanted you to know that all of us at Candler Mother Baby love you and our thoughts and prayers are with you. Peace be with you and your family.

    Courtney Grant

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  56. I am so sorry for the loss of your sweet baby, Thomas. Your steadfast love and faith is inspiring. Katie Kelley

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  57. Thinking of you and your family. Sweet baby Thomas is with my sweet son Hudson now - playing together in Heaven. The Lord does not always answer our prayers in the way we want them to be answered, but He has healed Thomas' heart. We are so blessed to have you as our pediatrician and so blessed by your courage and strength.
    ~ The Henninger Family

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  58. "I will not leave you comfortless" Praying for His Peace to enfold you at this time.

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  59. Trey and I are heartbroken for your loss. We had been praying and will continue to pray for you, your husband and your little angel. You have been the best mom baby Thomas could have had. We truly admire your strength and inspiring love. God bless you.

    Leonor, Trey and Mia Taylor

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  60. It breaks my heart that another little baby is in heaven and not in his mommy's arms. I am so very sorry. I know that his life will forever change yours and that your love for him will make each day bittersweet. You will forever remember him, miss him and yearn for him. He is and will always be perfect in heaven and will wait for you until you can meet again.

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