Tuesday, November 22, 2011

The Norwood....aka What they did yesterday!

Here is a link that describes Hypoplastic Left Heart Syndrome well, for anyone who is interested:
http://www.cincinnatichildrens.org/health/h/hlhs

Thomas had the Norwood procedure yesterday with the Sano modification (Sano shunt instead of BT shunt).

He is stable this morning and did ok overnight. We ended up being too exhausted to stay at the hospital overnight and came back to the RMH to sleep! I called every 3h to check on Thomas while pumping. He had a few issues overnight that I will go into more detail on after we get back from rounds in a little while.

We can go to "family rounds" on Thomas. We sign in between 645-7am, then hang around the hospital until they are rounding on him. After that we are kicked out of the unit until 10 when rounds are over (or later if they are doing any procedures, etc).

Anyway, I want to see if there were any other issues besides the ones I'm aware of before I post an update.

He is pretty stable though, considering all he went through, and we are so thankful!!!

Great is his faithfulness;
his mercies begin afresh each morning. (Lamentations 3:23 NLT)

14 comments:

  1. Thank you for your updates. They are so beautifully written and so informative. You are doing a great job, mommy. I'm not so sure I would have the strength that you and TJ have - it's very admirable. God is amazing. We are continuing to pray for all of you, especially that little warrior, Thomas. I always look forward to an update. Stay strong and know we are ALL thinking and praying for the YOU, TJ, and THOMAS!
    Love,
    Ginny

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  2. I am thankful he had a stable night and hope you receive a good report during family rounds!! Thinking of you and your precious little one!
    Jenny Griffith

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  3. Melissa, I've been reading every word of your daily blog upon hearing of the birth of your precious little soldier, Thomas. Please know you have been in our constant prayers as we keep up with your family's journey. Your inspirational words are a testimony of the power and grace of our Lord Jesus. Give your mom and dad a hug for me and know many, many people in Savannah are praying. Much Love, Sherri Goodman

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  4. Adrienne SokolowskiNovember 22, 2011 at 7:24 AM

    We are praying for your sweet little boy! He is so beautiful Dr. Behm! Keep up the fight! We love you!
    Steve, Adrienne, and Alexander Sokolowski

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  5. Prayers for baby Thomas. Dr. Behm my son Logan is one of your patients. You are a wonderful doctor and mother. I will continue to pray for Thomas and your family.
    With Love,
    Lindsey & Logan Westendorf

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  6. I could not be more excited for you all!! I know there is still this critical period & more surgeries to come for Thomas, but I am sooo thankful to our Gracious Heavenly Father for what he has done for you all, as well as the change Thomas' story has made in the difference of many families that are following your every post. Thank you so much for sharing Thomas story with us all & know that he is constantly in our thoughts & prayers.
    ~~~~~The Boone Family (Stephanie & family)

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  7. Praise God from whom all blessings flow!! I will continue to pray for Thomas and your family!
    Love,
    Miranda Knight

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  8. Yay! So glad ya'll got some rest, I am sure not a lot, but every bit helps at this point I imagine! Hopefully TJ won't be falling asleep on anymore elevators (or other random places!) Praying for more good news throughout the day and weeks ahead. I know there will likely be some bumps along the way, but look at what ya'll have made it through in just one short (although I am sure it seemed like an eternity to you) week! What a wonderful Thanksgiving this is turning out to be! SO much to be thankful for!
    All my love
    MER

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  9. Thomas is a fighter just like his Mom and Dad! Am preying for him 24/7 ! Every small step is a big step for precious Thomas !!! OOXXOOXXAnne

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  10. Praise God for this update! Thomas and you are in continued prayer.

    Cynthia (Cindy) Howard

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  11. Just heard about Thomas this weekend. So glad to hear the first surgery is over and went well. You will be in my thoughts and prayers. Kris Barends

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  12. Melissa & TJ....thanks for the updates. We are so glad you were able to get some rest last night. Please take care of yourselves so you can be there and be strong for Thomas. We pray for a day of healing for Thomas and day of peace for you. Always our best and love.....Aunt Mary & Uncle Ken...Wilson sends his best as well....lots of prayers coming your way.

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  13. That's wonderful to hear! Abigail (my oldest) and Harley (my little one that you've seen and helped several times) are both pulling for Baby Thomas - and Curt and I are thinking about you two as well. Just our few days at MMC with Harley as a wee one was tough enough, so I cannot imagine the stress you are under, but I know you take comfort in knowing he's in great hands with the doctors and YOU! Lauren Thomas

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  14. Heartfelt prayers are sent your way.
    Take good care and God bless,
    Carla Nesbitt

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