Thomas had a rough night, and we are not sure yet if chest closure will happen today or not. He seemed fussy and uncomfortable, his NIRS values were lower than usual, and he seemed like he was working harder to breathe over the ventilator. They made the decision to increase his sedation and give him medication to paralyze him. I'm still waiting on rounds so will know more after that.
This weekend has been an emotional one for me, and my hormones aren't helping! The busyness of the past two weeks has slowed down....thank goodness. Everything has kind of caught up with me....the magnitude of everything we have been through, how exhausted I am, etc. I am just so worried about Thomas and hate to leave his side. This is quite a roller coaster, and things can change so quickly. It's also hard to not know when the next steps forward will occur. This is definitely teaching me patience. Im also sad that TJ is heading back to savannah to go back to work. I'm going to miss him, but real life must go on outside the CICU.
Thank you to everyone who has been leaving sweet messages,comments, and texts. I'm still not up for phone calls or visitors, but I cherish every message! I just want to sit with Thomas, look at him, and pray for him. After all, this is my maternity leave. By the time we get home it will probably be time for me to return to work. I am just craving time alone with my precious baby.
Please keep praying for healing for Thomas!
I'll update more specific prayer requests after rounds so I can hear their take on what happened overnight.
“My grace is all you need. My power works best in weakness.” So now I am glad to boast about my weaknesses, so that the power of Christ can work through me. (2 Corinthians 12:9 NLT)